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  • Fundraising Plan - Canadian Hemophilia Society
    hemophilia The symptoms of hemophilia The diagnosis of hemophilia The treatment of hemophilia Comprehensive hemophilia care Factor replacement therapy Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/governance/help-in-creating-a-national-revenue-development-program/fundraising-plan/ (2014-10-09)
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  • Period of consultation - Canadian Hemophilia Society
    girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project Funded in 2014 Research Project Funded in 2013 Research Project Funded in 2012 Research Project Funded in 2011 Research Project Funded in 2010 Research Project Funded in 2009 Research Project Funded in 2008 Research Project Funded in 2007 Research Project Funded in 2006 Research Project Funded in 2005 CHS Baxter Fellowship Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Project Funded in 2013 Opportunities to participate in research Opportunities to participate in marketing research studies International Development

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/governance/help-in-creating-a-national-revenue-development-program/period-of-consultation/ (2014-10-09)
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  • Step 1: Campaign feasibility study - Canadian Hemophilia Society
    Fund Canadian Organizational Twins Recently closed twinning partnerships Treatment Centres British Columbia Alberta Saskatchewan Manitoba Ontario Quebec New Brunswick Prince Edward Island Nova Scotia Newfoundland and Labrador HCV HIV Hepatitis C and HIV Compensation I am a survivor HCV treatment support for 1986 1990 claimants National Endowment Fund Scholarship University of Ottawa Criminalization of HIV Non Disclosure HIV Know your rights US travel ban lifted World Hepatitis Day Recommendations for a Canadian Hepatitis C Strategy 2005 Hepatitis C An information booklet Alternative therapies Diagnosis Final Thoughts Getting treatment Healthy Lifestyle Hepatitis C Introduction Hepatitis C and HIV Co infection Psychosocial Aspects Standards of Care Symptoms Treatment Options for Hepatitis C Liver transplantation Youth Web About Us News Feed To Contact Us Commemoration of the Tainted Blood Tragedy Tree of Life Commemorations Canadian Blood Services November 26 2007 Héma Québec October 9 2008 CHS Newfounland Labrador Chapter Commemoration 2008 2009 Hemophilia Saskatchewan Commemoration 2009 CHS British Columbia Chapter Commemoration 2009 CHS Prince Edward Island Chapter Commemoration 2009 Hemophilia Ontario Commemoration 2009 Hemophilia Ontario Commemoration 2010 CHS Manitoba Chapter Commemoration 2010 Hemophilia Ontario Commemoration 2011 New Brunswick Chapter Commemoration 2012 Hemophilia Ontario Commemoration 2012 Hemophilia Saskatchewan Commemoration 2012 Hemophilia Saskatchewan Commemoration 2103 Hemophilia Ontario Commemoration 2013 Hemophilia Alberta Commemoration 2014 Media Room Press releases 2009 2011 Press releases 2006 2008 Search Français Our Partners Step 1 Campaign feasibility study As a result of the impending financial crisis CHS considered the possibility of conducting a national capital campaign to raise funds for a variety of projects including research awareness building and program delivery A planning study was commissioned to explore the feasibility of conducting such a campaign and the potential for success A national fundraising consulting firm The Fundraising Network was engaged to undertake the study The study took place over a three month period beginning in October 2003 During that period 45 personal interviews and one focus group session were conducted The confidential personal interviews included both internal and external constituencies 12 internal 20 external 13 combined internal external During the interview process participants were asked to comment on a variety of issues relating to the conduct of a potential successful capital campaign The subject areas tested include Case for Support Campaign goal and structure Availability of volunteer leadership Availability of prospective donors Potential personal commitments to the campaign Étude de faisabilité d une campagne En raison de la crise financière imminente la SCH a examiné la possibilité d entreprendre une collecte de fonds nationale capitale pour financer une variété de projets comprenant la recherche la sensibilisation et la mise en œuvre de programmes Une étude de planification a été commandée afin d explorer la faisabilité de mener une telle campagne et son potentiel de succès Une firme nationale d experts conseil en collecte de fonds The Fundraising Network a été embauchée pour entreprendre l étude Celle ci a duré trois mois commençant en octobre 2003 Au cours de cette période 45 interviews et une séance de groupe de discussion ont été réalisées Les interviews confidentielles étaient accordées à des parties concernées à l interne comme à l externe 12 à l interne 20 à l externe 13 à l interne et à l externe Durant le processus d interview on demandait aux participants de formuler des observations sur une variété de questions en rapport avec la tenue d une importante campagne potentielle réussie Les sujets comprenaient un argumentaire de soutien le but de la campagne et sa structure la disponibilité d une direction bénévole la disponibilité des donateurs éventuels les engagements personnels potentiels dans la campagne Findings and Conclusions Recommendations Findings and Conclusions Results from the interviews were categorized into the following topic areas which were used to measure the organization s potential for success in a campaign Image Organization Environment Experience Case for Support Leadership and Volunteers Prospects and Giving Image The image of CHS was considered appropriate for a campaign at the time CHS was well known and respected within its constituency Unfortunately the constituency is very small While some in the general community had an awareness of CHS primarily due to the activities of the organization during the Krever Inquiry there was little understanding of the CHS current mandate Through its efforts with tainted blood many current donors perceived CHS as the Canadian blood safety advocate Many comments were made about the recent decision of CHS not to pursue this perceived traditional role This was believed to potentially be damaging to the ongoing public awareness of CHS Those who knew CHS perceived it as a leader in its field in the provision of high quality healthcare programs and services for those with hemophilia and other bleeding disorders Those with lengthy relationships as donors event participants volunteers or patients and their families had the strongest and most positive feelings towards the organization There was high praise for the innovative treatment programs and genuine atmosphere of caring that permeates the organization This was credited to the dedication of the volunteer leadership at all levels Almost everyone interviewed suggested the largest obstacle facing CHS was its lack of cultivated visibility in the broader philanthropic community Organization The rating given for organization was low primarily due to the historical lack of recognition and support for fundraising at the senior administrative and board level Fundraising had always been something that had gone on in the background without meaningful purpose and direction While opting in the past not to create a separate foundation charged with development responsibilities the board had created a Resource Development Committee Unfortunately many on the committee did not see themselves as fundraisers nor felt capable of playing that role The organizational structure of CHS was problematic for fundraising While there were some guidelines in place there was general uncertainty over who had responsibility for fundraising at various levels As a result everyone did a little and no one did it well There was infrequent communication and cooperation between those responsible for fundraising at the national and chapter levels Recent attempts

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/governance/help-in-creating-a-national-revenue-development-program/step-1--campaign-feasibility-study/ (2014-10-09)
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  • Step 2: A new direction for the CHS based on recommendations - Canadian Hemophilia Society
    Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project Funded in 2014 Research Project Funded in 2013 Research Project Funded in 2012 Research Project Funded in 2011 Research Project Funded in 2010

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/governance/help-in-creating-a-national-revenue-development-program/step-2--a-new-direction-for-the-chs-based-on-recommendations/ (2014-10-09)
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  • Step 3: CHS Revenue Development Program - Canadian Hemophilia Society
    provide an opportunity for individuals with affluence influence and a passion for the work of CHS and its affiliate members to become involved with the nation wide fundraising activities The principal role of the Board of Governors will be to provide overall advice and assist directly with the Major Giving and Planned Giving Programs Development Office A Development Office will house all of the staff involved with fundraising activities at the national level Staff working on Revenue Development Program activities in various locations across the country will also be deemed to be part of the Development Office This group will design and implement a number of fundraising programs at the national level as well as assist chapters and regions in the design and implementation of programs that would more effectively be delivered at the local level Some programs will require national coordination as well as local involvement Director of Development The Director of Development is the chief development officer for the organization and is responsible for overseeing all of the fundraising activities related to the Revenue Development Program The Director of Development reports to the Executive Director CHS The Director of Development is supported by a Major Giving Planned Giving Manager and an Annual Giving Manager as well as research and clerical support Eventually a Development Coordinator will be hired for each of several regional offices to manage all of the fundraising related activities within that province or region Western Canada Ontario Quebec and Maritime Canada Fundraising Programs Annual Giving The Development Office is responsible for designing direct response memoriam tribute sponsorship innovation and membership programs to be implemented at the national and chapter level They suggest guidelines and strategies for special events and third party events to be implemented at the chapter level The Development Office also coordinates the design and ongoing implementation of the CHS signature event The Development Office keeps chapters informed as to results of various fundraising programs from their area and seeks regional input whenever possible The chapters and regions continue to operate many of the fundraising programs they did prior to the Revenue Development Program coming into force These include local special events gaming merchandise sales and certain direct response programs They work with the Development Office in the delivery of new direct response memoriam and tribute sponsorship innovation and membership programs If local participation is not available the Development Office does its best to implement the programs on behalf of the chapter or region Signature Event CHS will hold an annual signature special event as the public hallmark of its fundraising activities The event has its own operating structure and relies heavily upon a committed group of volunteers for whom this would be the best use of their time and resources for the organization Corporate partners and significant sponsorship are vital to mount the type of signature event required by CHS The NFC in conjunction with the Development Office is responsible for coordinating the process of determining the best type of event to become the CHS signature event The Signature Event Coordinator is responsible for designing and coordinating the event in conjunction with local volunteers and the NFC Third Party Events and Activities CHS like many charities relies heavily on the work and activity of other organizations to raise funds for them Service clubs community groups corporations and other organizations often enjoy and gain advantage from supporting charities Every effort is given to encourage and recruit third party fundraising activity Most of these types of events take place at the chapter or region level To avoid confusion and misunderstandings with potential third party partners the Development Office assists chapters through a third party activity policy and protocol Direct Response The Development Office will be responsible for designing and implementing a national direct response program The program will be part of the annual fundraising plan to be approved by the NFC Names from the national database will be used for the program and the names of any new donors will be added to the database The program may involve multiple approaches to various segments of the database and use direct mail telemarketing and email technology It will be designed to achieve two purposes First it will be used to find new donors to CHS and secondly it must effectively provide existing donors with a method and incentive to increase their level of giving Successful results from this last objective will be the indication to move donors into the major giving program stream The messages to be used for direct response will be reviewed by the NFC and will be tailored to each region where possible using local stories mailing addresses and letter signatories The Annual Giving Manager will keep each chapter informed as to results from their area and will seek advice from chapters on strategies for future direct response activities Memoriam Tribute Giving The Annual Giving Manager will design a memoriam and tribute program It will include developing policies and materials to enable donors to make memoriam and tribute gifts This will include providing donation materials to chapters and regions for distribution to funeral homes and placing advertisements in newspaper obituary columns in key markets across the country The memoriam tribute program will be marketed extensively in all fundraising promotional vehicles Tribute giving is another excellent method of building the donor base and generating awareness for CHS Innovation Program More and more organizations are looking for new ways to raise money Donors today are better informed and are attracted to organizations that meet their needs with creativity and sophistication Corporations have shrinking philanthropic budgets and are becoming averse to giving away shareholders money without some direct benefit to the firm s bottom line Some of the more progressive charitable organizations in North America are meeting these challenges by developing fundraising programs that go beyond traditional philanthropy These programs usually involve some form of business opportunity or corporate partnership such as sponsorship and co branding Other programs include public gaming and retail operations An

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/governance/help-in-creating-a-national-revenue-development-program/step-3--chs-revenue-development-program/ (2014-10-09)
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  • Step 4: Philanthropy Policy - Canadian Hemophilia Society
    Factor replacement therapy Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/governance/help-in-creating-a-national-revenue-development-program/step-4--philanthropy-policy/ (2014-10-09)
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  • Newsmagazine - Canadian Hemophilia Society
    Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/newsmagazine/ (2014-10-09)
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  • Annual Reports - Canadian Hemophilia Society
    B What is hemophilia The history of hemophilia The clotting problem in hemophilia Heredity of hemophilia The symptoms of hemophilia The diagnosis of hemophilia The treatment of hemophilia Comprehensive hemophilia care Factor replacement therapy Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/annual-reports/ (2014-10-09)
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