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  • Collaboration - Canadian Hemophilia Society
    To Support Us To Volunteer To Contact Us Bleeding Disorders Hemophilia A and B What is hemophilia The history of hemophilia The clotting problem in hemophilia Heredity of hemophilia The symptoms of hemophilia The diagnosis of hemophilia The treatment of hemophilia Comprehensive hemophilia care Factor replacement therapy Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/collaboration/ (2014-10-09)
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  • History - Canadian Hemophilia Society
    treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project Funded in 2014 Research Project Funded in 2013 Research Project Funded in 2012 Research Project Funded in 2011 Research Project Funded in 2010 Research Project Funded in 2009 Research Project Funded in 2008 Research Project Funded in 2007 Research Project Funded in 2006 Research Project Funded in 2005 CHS Baxter Fellowship Program General Criteria General Conditions Application Form Research Projects Funded in

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/history/ (2014-10-09)
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  • Events Calendar - Canadian Hemophilia Society
    and Labrador About our Chapter Programs Upcoming Activities Recent Activities Newsletter Treatment Centres To Support Us To Volunteer To Contact Us Bleeding Disorders Hemophilia A and B What is hemophilia The history of hemophilia The clotting problem in hemophilia Heredity of hemophilia The symptoms of hemophilia The diagnosis of hemophilia The treatment of hemophilia Comprehensive hemophilia care Factor replacement therapy Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/events-calendar/ (2014-10-09)
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  • To Volunteer - Canadian Hemophilia Society
    treatment of hemophilia Comprehensive hemophilia care Factor replacement therapy Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/to-volunteer/ (2014-10-09)
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  • Benefits of Volunteering - Canadian Hemophilia Society
    Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/to-volunteer/benefits-of-volunteering/ (2014-10-09)
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  • National Volunteer Awards - Canadian Hemophilia Society
    Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project Funded in 2014 Research Project Funded in 2013 Research Project Funded in 2012 Research Project Funded in 2011 Research Project Funded in 2010 Research Project Funded in 2009 Research Project Funded in 2008 Research Project Funded in 2007 Research Project Funded in 2006 Research Project Funded in 2005 CHS Baxter Fellowship Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Project Funded in 2013 Opportunities to participate in research Opportunities to participate in marketing research studies International Development Karttik Shah Youth Fellowship International Twinning Projects Canadian Centre Twins Hemophilia Treatment Centre partnerships ended recently Canadian Hemophilia Society International Projects Fund Canadian Organizational Twins Recently closed twinning partnerships Treatment Centres British Columbia Alberta Saskatchewan Manitoba Ontario Quebec New Brunswick Prince Edward Island Nova Scotia Newfoundland and Labrador HCV HIV Hepatitis C and HIV Compensation I am a survivor HCV treatment support for 1986 1990 claimants National Endowment Fund Scholarship University of Ottawa Criminalization of HIV Non Disclosure HIV Know your rights US travel ban lifted World Hepatitis Day Recommendations for a Canadian Hepatitis C Strategy 2005 Hepatitis C An information booklet Alternative therapies Diagnosis Final Thoughts Getting treatment Healthy Lifestyle Hepatitis C Introduction Hepatitis C and HIV Co infection Psychosocial Aspects Standards of Care Symptoms Treatment Options for Hepatitis C Liver transplantation Youth Web About Us News Feed To Contact Us Commemoration of the Tainted Blood Tragedy Tree of Life Commemorations Canadian Blood Services November 26 2007 Héma Québec October 9 2008 CHS Newfounland Labrador Chapter Commemoration 2008 2009 Hemophilia Saskatchewan Commemoration 2009 CHS British Columbia Chapter Commemoration 2009 CHS Prince Edward Island Chapter Commemoration 2009 Hemophilia Ontario Commemoration 2009 Hemophilia Ontario Commemoration 2010 CHS Manitoba Chapter Commemoration 2010 Hemophilia Ontario Commemoration 2011 New Brunswick Chapter Commemoration 2012 Hemophilia Ontario Commemoration 2012 Hemophilia Saskatchewan Commemoration 2012 Hemophilia Saskatchewan Commemoration 2103 Hemophilia Ontario Commemoration 2013 Hemophilia Alberta Commemoration 2014 Media Room Press releases 2009 2011 Press releases 2006 2008 Search Français Our Partners National Volunteer Awards CHS honours VOLUNTEERS At the CHS Awards Banquet held May 25 in Winnipeg in conjunction with Rendez vous 2013 the CHS recognized dedicated volunteers staff and health care providers who made a significant contribution to the bleeding disorder community The CHS National Awards Program has become a biennial program with awards presented every two years in May at the Rendez vous joint meeting hosted by the CHS and the four health care groups The next deadline for submitting nominations is January 31 2015 Nomination Forms Inauguration of the John Plater Advocacy Award Frank Schnabel Award Honorary Life Membership Award Award of Appreciation International Contribution Award Chapter Leadership Award Pierre Latreille Award Chapter Recognition Award The David Pouliot Achievement Award Exceptional Service Award Dr Cecil Harris Award Nomination Forms National Awards Nomination Form To be used for the following awards Frank Schnabel Honourary Life Membership Chapter Leadership Exceptional Service International Contribution Dr Cecil Harris Award of Appreciation and Pierre Latreille Award Inauguration of the John Plater Advocacy Award John Plater volunteered his time and skills and worked tirelessly for many years on behalf of people with bleeding disorders To honour his memory the CHS has created the John Plater Advocacy Award This award was initiated to honour his contribution to both the Canadian Hemophilia Society and Hemophilia Ontario Boards of Directors as well as his outstanding work to advocate for the rights of people with bleeding disorders HIV and hepatitis C to improve care and treatment to advocate for a safer blood system and to obtain financial compensation for people with bleeding disorders infected with HIV and HCV through the blood system In future years this award will be presented to honour a volunteer at the national or chapter level of the CHS who over a number of years has rendered distinguished advocacy services to meet the mission and goals of the CHS Frank Schnabel Award This award was initiated to honour the outstanding service of Frank Schnabel the founder of the Canadian Hemophilia Society for his valued role in the growth and development of the CHS the education and care of people with hemophilia and other bleeding disorders and the education of the public regarding the needs of the bleeding disorders community The award is presented in his name to honour a volunteer at the national level of the CHS who over a number of years has rendered distinguished services and noteworthy contributions to the mission and objective of the CHS at the national level 2013 RECIPIENT FRANÇOIS LAROCHE François joined the Quebec Chapter as an active volunteer in 1995 Trained in journalism at the Université de Laval François quickly took on the challenge of resurrecting the chapter s newsletter L Écho du facteur in 1996 and has been its editor inchief for the past 15 years He was a delegate to the national board for a number of years He has been active in blood safety issues in Quebec as well as serving as president of the Quebec Chapter for over 10 years in total He worked alongside the CHS as the volunteer interim executive director of the CHSQ for a year while the chapter got back on its feet In 2002 after the passing of Barry Isaac François agreed to take on the volunteer job of editor in chief for the CHS newsletter Hemophilia Today He has continued in this position for the past 11 years working together with the national staff and volunteers to bring all members of the CHS bleeding disorder community clear and concise information about treatment the blood system compensation reports from WFH congresses the latest information on research and on going information about all CHS chapters The quality of the CHS newsletter is in part due to François excellent communication and language skills as well as his vast knowledge of bleeding disorders and treatment needs Working side by side with CHS staff and volunteers he continues to bring a variety of pertinent information from the world of hemophilia to our front doors in a format that is easy to read while maintaining a professional look François continues to be a dedicated full time volunteer at the Quebec Chapter level holding the position of president sitting on the Hemovigilance Committee of the Ministère de la Santé collaborating internationally in twinning projects and managing the chapter s staff As a person working to maintain the quality of services and information offered by the CHS to people with a bleeding disorder François helps to educate and empower the community so that people living with a bleeding disorder can get the information they need to take charge of their lives Previous recipients 2006 Eric Stolte 2004 Pam Wilton 2003 Tom Alloway Ph D 2002 Bill Mindell 2001 Michael McCarthy 1999 Barry Isaac Ph D 1998 Erma Chapman 1997 John Plater 1997 Ken Little 1996 Durhane Wong Rieger Ph D 1994 Frank Bott 1992 David Page 1991 Peter Wachter Honorary Life Membership Award This award is the highest category of National Awards and is based on exceptional leadership and devotion to the CHS over many years This award is given to an individual who has merited special recognition for outstanding efforts at the national level to further the mission and objectives of the CHS and the development of public recognition of the CHS and its goals 2013 RECIPIENT PAMELA WILTON Pam Wilton s exceptional leadership and devotion to the CHS for more than 20 years makes her an ideal recipient for the Honorary Life Member Award When her son was diagnosed more than twenty years ago Pam immediately got involved in projects that embody all the objectives for which this award was created working towards better treatment for all and improved educational and support services for people in the bleeding disorder community Pam has sat on various boards and committees over the years at the regional SWOR provincial Hemophilia Ontario and national CHS levels and has recently been elected to the Executive Committee of the WFH She has been a delegate for Ontario on the national board for over ten years and served as vice president of programs and chaired the national Program Committee for eight years She has been a member of the CHS Executive Committee since 2001 and served as president from 2008 to 2010 Pam is currently the chair of the CHS Care and Treatment Committee and the International Projects Committee Pam s unique perspective as a parent and as a nurse has been instrumental in the development of the CHS educational resources such as All About Hemophilia a Guide for Families All About Carriers the FactorFirst cards and the Passport to well being program She has been a strong supporter of standards of comprehensive care and has lent her support to other regions of the country who were advocating for improved comprehensive care in their region Pam is always ready to share her expertise and knowledge as a speaker at the CHS Medical and Scientific Symposia and WFH congresses Pam s dedication and outstanding efforts to further the mission and objectives of the CHS are a source of inspiration for all Previous recipients 2011 Bruce Ritchie MD 2008 Tom Alloway Ph D 2004 John Plater 2002 Frank Bott 1997 James Kreppner 1997 Durhane Wong Rieger Ph D 1996 Pierre Fournier 1995 David Page 1994 John Jack McDonald Ph D 1991 Elaine Woloschuk Award of Appreciation This award honours an individual who has demonstrated outstanding service to the care of people with inherited bleeding disorders over and above their responsibilities as a member of the hemophilia health care team This person must have worked with patients with hemophilia and their families for a minimum of 5 years Preference will be given to an individual whose work has contributed to improving care and treatment on a national level through the CHS It is preferable that there be only one recipient from a category This award will be limited to a maximum of 2 individuals in a given year unless exceptional circumstances require special consideration 2013 RECIPIENT MORNA BROWN RN Morna Brown is the embodiment of a hemophilia nurse During her years at the hemophilia treatment centre in Calgary she helped create a warm and inviting environment for patients families and colleagues alike Her clinical skills are second to none and many of us can attribute Morna with teaching us the art of caring for individuals with bleeding disorders Her retirement has saddened those who have had the priviledge of working with her Morna has gone above and beyond her role as a hemophilia nurse She has been an active member of the local bleeding disorder community by participating in many of the organized social events and has been recognized by the local CHS chapter for her efforts On many occasions when patients were asked who their hemophilia doctor is they replied Morna Brown She is a strong patient advocate and empowered many by providing education and the skills needed to effectively manage their disorder She gave patients the encouragement and tools to live their lives to the fullest Morna helped train new members of the hemophilia team in Calgary by happily sharing her knowledge with physicians nurses and allied health professionals alike She ensured that patients received the highest level of care by providing formal and informal educational sessions to other disciplines and medical services But Morna never stopped learning herself she was always keen to broaden her own knowledge by keeping abreast of the latest developments in the field of bleeding disorders and participating in research activities She never shied away from new research projects and selflessly offered her support in recruiting patients without asking for any recognition or reimbursement in return The rapport she developed with patients at the clinic was tremendous and Morna truly is one of the key factors to the success of establishing the Calgary Adult Bleeding Disorders clinic in 2007 Previous recipients 2011 Lucie Lacasse RN Suzanne Douesnard Psychologist 2008 Anne Marie Stain RN 2008 Linda Waterhouse RSW 2007 Claudine Amesse RN 2007 Greig Blamey PT 2006 Dorine Belliveau RN 2006 Ruanna Jones RSW 2005 Sylvie Lacroix RN 2005 Nichan Zourikian PT 2004 Jenny Aikenhead PT 2004 Rose Jacobson RN 2004 Jennifer Crump RN 2004 Michelle Hendry Lab Tech 2003 Sherry Purcell RN 2003 Pam Hilliard PT 2002 Maureen Brownlow RSW 2002 Julia Sek RN 2001 Kathy Mulder PT 2001 Wilma McClure RN 2000 Betty Ann Paradis RN 1999 Nora Schwetz RN 1998 Ann Harrington RN 1998 Jane Neil PT 1997 Lois Lindner RN 1997 Muriel Girard RN 1996 John Jack McDonald Ph D RSW 1996 Brenda Blair RN 1995 Lorraine Bernier RN International Contribution Award This award is presented in recognition of a volunteer who through continuing efforts over a number of years has made a significant international contribution to the development of care and services for people with bleeding disorders 2013 RECIPIENT PATRICIA STEWART As chair of the Quebec Chapter International Projects Committee for almost 15 years Patricia Stewart has taken part in three of its twinning projects including one with Tunisia that won the WFH Twinning of the Year Award for 2010 With her strong interest in the international community Patricia has worked closely with the committee to ensure the success of each of its activities and visits as much for the Quebec Chapter delegates sent abroad as for the twinning partners visiting Quebec Patricia is passionate about international twinning even taking Spanish courses so that she can better communicate with members and patients of the chapter s most recent twinning partner Nicaragua Patricia deserves this award for her dedication and contributions to the goal that each person living with an inherited bleeding disorder in the world will have access to optimal care She strives to make certain that each need is heard and met and that the WFH s objective of Treatment for All will one day be a reality Previous recipients 2011 Kathy Mulder PT 2008 Dr Brian Luke 2007 David Page 2006 Dr Man Chiu Poon Chapter Leadership Award This award is given to an individual who has merited special national recognition for outstanding efforts to further the growth and development of a particular chapter Among the criteria to be considered in making this award are the following exceptional leadership and devotion at the chapter level over a minimum period of 5 years clearly identifiable achievements that have contributed to the development and growth of the chapter in an outstanding and significant way e g fundraising program and services volunteer recruitment and membership growth In making a nomination consider who has made the greatest contribution to the development of the chapter over its history and who meets the criteria set out above This does not preclude someone who has also made a contribution at the national level but the focus of this award is on achievements on behalf of the chapter The award can be made posthumously 2013 RECIPIENT BILL FEATHERSTONE CHS MANITOBA Bill Featherstone has served the Manitoba Chapter for over 30 years In 2005 when it became clear that the Manitoba Chapter was no longer financially viable Bill came to the rescue of the chapter Bill was the pragmatic voice of reason in a time when the chapter had to follow their heads and not their hearts He had the knowledge and the skill to lead the Manitoba Chapter out of certain financial ruin In addition to modernizing the accounting practices of the chapter in 2008 Bill led the Board to conduct a Manitoba Member Needs Assessment The results have been used to encourage the chapter to reinvent itself and to respond to the current needs of their membership 2008 marked a new round of Strategic Planning where Bill encouraged the chapter to accept the new economic reality and to move forward to find new sources of revenue Bill has a passion for good governance He has chaired episodic constitution committees that have reviewed and revised sections of the Manitoba Chapter constitution regarding election practices and conflict of interest guidelines Bill gave the chapter strength and guidance when they needed it most He is an excellent friend of the chapter has been honored with the Special Recognition Award the chapter s highest volunteer award for a person without an inherited bleeding disorder He is a mentor to all the directors of the Manitoba Board and to the chapter s executive director Previous recipients 2011 Helen Gibson 2008 Jeff Beck 2007 Dan Doran 2006 Norman Locke 2005 Christine Keilback 2004 François Laroche 2003 James Jimmy Love in memoriam 2001 Eric Stolte and Craig Wright in memoriam 1999 Lois Bedard Joyce Rosenthal 1998 Normand Landry Pierre Latreille Award This award was initiated in memory of Pierre Latreille who was the CHS Finance Manager for many years This award for excellence is given to an employee of the CHS who has worked at the national provincial or regional level for a minimum of 5 years The recipient is expected to have demonstrated skills dedication and accomplishments beyond the normal duties of an employee The recipient should meet the following criteria which are based on qualities demonstrated by Pierre Personal character and values a person with a positive caring and supportive attitude towards volunteers and other staff A sense of teamwork a person who is a reliable team player dependable and co operative

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/to-volunteer/national-volunteer-awards/ (2014-10-09)
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  • Our Committees - Canadian Hemophilia Society
    Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project Funded in 2014 Research Project Funded in 2013 Research Project Funded in 2012 Research Project Funded in 2011 Research Project Funded in 2010 Research Project Funded in 2009 Research Project Funded in 2008 Research Project Funded in 2007 Research Project Funded in 2006 Research Project Funded in 2005 CHS Baxter Fellowship Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Project Funded in 2013 Opportunities to participate in research Opportunities to participate in marketing research studies International Development Karttik Shah Youth Fellowship International Twinning Projects Canadian Centre Twins Hemophilia Treatment Centre partnerships ended recently Canadian Hemophilia Society International Projects Fund Canadian Organizational Twins Recently closed twinning partnerships Treatment Centres British Columbia Alberta Saskatchewan Manitoba Ontario Quebec New Brunswick Prince Edward Island Nova Scotia Newfoundland and Labrador HCV HIV Hepatitis C and HIV Compensation I am a survivor HCV treatment support for 1986 1990 claimants National Endowment Fund Scholarship University of Ottawa Criminalization of HIV Non Disclosure HIV Know your rights US travel ban lifted World Hepatitis Day

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/to-volunteer/our-committees/ (2014-10-09)
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  • Volunteer Opportunities - Canadian Hemophilia Society
    von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/to-volunteer/volunteer-opportunities/ (2014-10-09)
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