archive-ca.com » CA » H » HEMOPHILIA.CA

Total: 850

Choose link from "Titles, links and description words view":

Or switch to "Titles and links view".
  • To Contact Us - Canadian Hemophilia Society
    deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/to-contact-us/ (2014-10-09)
    Open archived version from archive


  • About our Site - Canadian Hemophilia Society
    and Labrador About our Chapter Programs Upcoming Activities Recent Activities Newsletter Treatment Centres To Support Us To Volunteer To Contact Us Bleeding Disorders Hemophilia A and B What is hemophilia The history of hemophilia The clotting problem in hemophilia Heredity of hemophilia The symptoms of hemophilia The diagnosis of hemophilia The treatment of hemophilia Comprehensive hemophilia care Factor replacement therapy Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/about-our-site/ (2014-10-09)
    Open archived version from archive

  • Disclaimer - Canadian Hemophilia Society
    of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/about-our-site/disclaimer/ (2014-10-09)
    Open archived version from archive



  • Privacy Policy - Canadian Hemophilia Society
    Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project Funded in 2014 Research Project Funded in 2013 Research Project Funded in 2012 Research Project Funded in 2011 Research Project Funded in 2010 Research Project Funded in 2009 Research Project Funded in 2008 Research Project Funded in 2007 Research Project Funded in 2006 Research Project Funded in 2005 CHS Baxter Fellowship Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Project Funded in 2013 Opportunities to participate in research Opportunities to participate in marketing research studies International Development Karttik Shah Youth Fellowship International Twinning Projects Canadian Centre Twins Hemophilia Treatment Centre partnerships ended recently Canadian Hemophilia Society International Projects Fund Canadian Organizational Twins Recently closed

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/about-our-site/privacy-policy/ (2014-10-09)
    Open archived version from archive

  • Terms of use - Canadian Hemophilia Society
    Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the WFH variant Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS

    Original URL path: http://www.hemophilia.ca/en/about-the-chs/about-our-site/terms-of-use/ (2014-10-09)
    Open archived version from archive

  • Our Stories - Canadian Hemophilia Society
    Disorders Hemophilia A and B What is hemophilia The history of hemophilia The clotting problem in hemophilia Heredity of hemophilia The symptoms of hemophilia The diagnosis of hemophilia The treatment of hemophilia Comprehensive hemophilia care Factor replacement therapy Other treatments The complications of hemophilia Blood borne infections Inhibitors Joint damage Precautions Carriers of hemophilia A and B Von Willebrand disease Preface Acknowledgements An Introduction to von Willebrand disease Types of von Willebrand disease Heredity of von Willebrand disease Symptoms of von Willebrand disease Diagnosis of von Willebrand disease Treatment options for von Willebrand disease Introduction Recommended Treatments for Men and Women Not Recommended Treatments Recommended Treatments for Women with Gynecological Complications Living with von Willebrand disease Comprehensive care Safety of Blood Products Nose bleeds Conception Pregnancy and Childbirth Medication to Be Avoided Exercise Fitness and Sports Child Care and Schooling Employment Insurance Travelling Medical Identification Final word Where to get more information Hemophilia Bleeding Disorder Treatment Centres Glossary Bibliography Other factor deficiencies Factor I deficiency Fibrinogen deficiency Factor II deficiency Prothrombin deficiency Factor V deficiency Combined factor V and factor VIII deficiency Factor VII deficiency Factor X deficiency Factor XI deficiency Hemophilia C Factor XII deficiency Factor XIII deficiency Summary Chart Platelet function disorders Introduction Symptoms of platelet function disorders Diagnosis of platelet function disorders Types of platelet function disorders Treatment of platelet function disorders Precautions PDF documents Clotting factor concentrates Women Inherited bleeding disorders affecting women Symptoms Diagnosis Inheritance Medical treatment options for menorrhagia and other symptoms Gynaecological treatment options for menorrhagia Precautions for pregnant women Staying healthy Bleeding disorder treatment centres Educational resources Stories from women and girls who bleed too much About the CHS Support and Education Passport to well being Destination fitness Home care The road to independence Roadmap for managing pain Navigating the emergency department Bon Voyage Travelling with a bleeding disorder Charting Your Course PEP Parents Empowering Parents program Vocational assessment tool Career planning and scholarship links Scholarship Program Federal and Provincial Support Programs Insurance coverage Educational Material Printed documents Bleeding disorders in women Carriers of hemophilia A or B Hemophilia Hepatitis C HIV Inhibitors Physical activity and sports Platelet function disorders Rare factor deficiencies Relevant to all bleeding disorders Resources for children Von Willebrand disease Videos Care and Treatment Emergency Care Pain Management Nursing Physiotherapy Introduction Constitution of the Canadian Physiotherapists in Hemophilia Care CPHC Standards of Physiotherapy Care and Assessment Selected Journal Articles Educational material Bibliography Other resources Social Work Community Partners and Links Practice Guidelines Mission Services Interventions Standards of Practice Comprehensive Care Standards Safe Secure Blood Supply Products in the pipeline CHS Policy on Paid Plasma Donations Report Cards on Canada s Blood System 2008 2010 Report Card on Canada s Blood System 2005 2007 Report Card on Canada s Blood System 2003 2004 Report Card on Canada s Blood System 2002 Report Card on Canada s Blood System 1999 Report Card on Canada s Blood System Inhibitor rates related to treatment product in previously untreated patients Statement from the

    Original URL path: http://www.hemophilia.ca/en/our-stories/ (2014-10-09)
    Open archived version from archive

  • Arnaud in the land of dreams - Canadian Hemophilia Society
    General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project Funded in 2014 Research Project Funded in 2013 Research Project Funded in 2012 Research Project Funded in 2011 Research Project Funded in 2010 Research Project Funded in 2009 Research Project Funded in 2008 Research Project Funded in 2007 Research Project Funded in 2006 Research Project Funded in 2005 CHS Baxter Fellowship Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Project Funded in 2013 Opportunities to participate in research Opportunities to participate in marketing research studies International Development Karttik Shah Youth Fellowship International Twinning Projects Canadian Centre Twins Hemophilia Treatment Centre partnerships ended recently Canadian Hemophilia Society International Projects Fund Canadian Organizational Twins Recently closed twinning partnerships Treatment Centres British Columbia Alberta Saskatchewan Manitoba Ontario Quebec New Brunswick Prince Edward Island Nova Scotia Newfoundland and Labrador HCV HIV Hepatitis C and HIV Compensation I am a survivor HCV treatment support for 1986 1990 claimants National Endowment Fund Scholarship University of Ottawa Criminalization of HIV Non Disclosure HIV Know your rights US travel ban lifted World Hepatitis Day Recommendations for a Canadian Hepatitis C Strategy 2005 Hepatitis C An information booklet Alternative therapies Diagnosis Final Thoughts Getting treatment Healthy Lifestyle Hepatitis C Introduction Hepatitis C and HIV Co infection Psychosocial Aspects Standards of Care Symptoms Treatment Options for Hepatitis C Liver transplantation Youth Web About Us News Feed To Contact Us Commemoration of the Tainted Blood Tragedy Tree of Life Commemorations Canadian Blood Services November 26 2007 Héma Québec October 9 2008 CHS Newfounland Labrador Chapter Commemoration 2008 2009 Hemophilia Saskatchewan Commemoration 2009 CHS British Columbia Chapter Commemoration 2009 CHS Prince Edward Island Chapter Commemoration 2009 Hemophilia Ontario Commemoration 2009 Hemophilia Ontario Commemoration 2010 CHS Manitoba Chapter Commemoration 2010 Hemophilia Ontario Commemoration 2011 New Brunswick Chapter Commemoration 2012 Hemophilia Ontario Commemoration 2012 Hemophilia Saskatchewan Commemoration 2012 Hemophilia Saskatchewan Commemoration 2103 Hemophilia Ontario Commemoration 2013 Hemophilia Alberta Commemoration 2014 Media Room Press releases 2009 2011 Press releases 2006 2008 Search Français Our Partners Arnaud in the land of dreams by Chantal Raymond CHS national communications manager Arnaud knows all about marsupials He knows that marsupial babies stay hidden in their mother s pouch for up to six months before venturing into the outside world and that marsupials never drink astonishing isn t it Arnaud knows all this because he is the proud adoptive father and also a grandfather of Peach a koala that lives at Australia s Featherdale Wildlife Park How did this 11 year old Montrealer come to have such a unique family tree Very

    Original URL path: http://www.hemophilia.ca/en/our-stories/arnaud-in-the-land-of-dreams/ (2014-10-09)
    Open archived version from archive

  • Paul W. - Meet the real experts: life stages - Canadian Hemophilia Society
    Creutzfeldt Jakob disease vCJD CHS position on donor deferrals CHS position on HIV O deferral in Africa Hemophilia Research Million Dollar Club Research CHS Dream of a Cure Research Program General Criteria General Conditions Application Forms Summer Studentships in Inherited Bleeding Disorders Research CHS Research Grants for 2014 CHS Research Grants for 2013 CHS Research Grants for 2012 CHS Research Grants for 2011 CHS Research Grants for 2010 CHS Research Grants for 2009 CHS Research Grants for 2008 CHS Research Grants for 2007 CHS Research Grants for 2006 CHS Research Grants for 2005 The CHS Pfizer Care Until Cure Research Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Projects Funded in 2013 Research Projects Funded in 2012 Research Projects Funded in 2011 Research Projects Funded in 2010 Research Projects Funded in 2009 Research Projects Funded in 2008 Research Projects Funded in 2007 Research Projects Funded in 2006 Research Projects Funded in 2005 CHS Novo Nordisk Psychosocial Research Program General Criteria General Conditions Application form Research Project Funded in 2014 Hemostasis Fellowship Program General Criteria General Conditions Application form Research Project Funded in 2014 Research Project Funded in 2013 Research Project Funded in 2012 Research Project Funded in 2011 Research Project Funded in 2010 Research Project Funded in 2009 Research Project Funded in 2008 Research Project Funded in 2007 Research Project Funded in 2006 Research Project Funded in 2005 CHS Baxter Fellowship Program General Criteria General Conditions Application Form Research Projects Funded in 2014 Research Project Funded in 2013 Opportunities to participate in research Opportunities to participate in marketing research studies International Development Karttik Shah Youth Fellowship International Twinning Projects Canadian Centre Twins Hemophilia Treatment Centre partnerships ended recently Canadian Hemophilia Society International Projects Fund Canadian Organizational Twins Recently closed twinning partnerships Treatment Centres British Columbia Alberta Saskatchewan Manitoba Ontario Quebec New Brunswick Prince Edward Island Nova Scotia Newfoundland and Labrador HCV HIV Hepatitis C and HIV Compensation I am a survivor HCV treatment support for 1986 1990 claimants National Endowment Fund Scholarship University of Ottawa Criminalization of HIV Non Disclosure HIV Know your rights US travel ban lifted World Hepatitis Day Recommendations for a Canadian Hepatitis C Strategy 2005 Hepatitis C An information booklet Alternative therapies Diagnosis Final Thoughts Getting treatment Healthy Lifestyle Hepatitis C Introduction Hepatitis C and HIV Co infection Psychosocial Aspects Standards of Care Symptoms Treatment Options for Hepatitis C Liver transplantation Youth Web About Us News Feed To Contact Us Commemoration of the Tainted Blood Tragedy Tree of Life Commemorations Canadian Blood Services November 26 2007 Héma Québec October 9 2008 CHS Newfounland Labrador Chapter Commemoration 2008 2009 Hemophilia Saskatchewan Commemoration 2009 CHS British Columbia Chapter Commemoration 2009 CHS Prince Edward Island Chapter Commemoration 2009 Hemophilia Ontario Commemoration 2009 Hemophilia Ontario Commemoration 2010 CHS Manitoba Chapter Commemoration 2010 Hemophilia Ontario Commemoration 2011 New Brunswick Chapter Commemoration 2012 Hemophilia Ontario Commemoration 2012 Hemophilia Saskatchewan Commemoration 2012 Hemophilia Saskatchewan Commemoration 2103 Hemophilia Ontario Commemoration 2013 Hemophilia Alberta Commemoration 2014 Media Room Press releases 2009 2011 Press releases 2006 2008 Search Français Our Partners Paul W Meet the real experts life stages by Paul Wilton London Ontario My name is Paul I am 25 years old and I have severe hemophilia factor VIII deficiency I was diagnosed at 9 months of age so living with hemophilia is all that I can remember I would be lying if I said hemophilia hasn t made much of a difference in my life I m sure that it has but most of the time my life has been pretty normal When I was first diagnosed and I had a bleed my parents took me to emergency for a treatment I was there sometimes three or four times a week Despite the great toys and popsicles I insisted on screaming and squirming for every needle I m proud to say that it once took three interns and one very mean nurse to hold me down I was wearing the staff down so they taught my parents how to give the factor through a port a cath implanted in my chest This made life a lot easier for my family as it allowed us to work towards doing infusions at home Most of my teachers were pretty good about keeping my factor ice and Cyklokapron tranexamic acid at school I just remember one teacher that really gave me a hard time I think she thought I would bleed to death by playing basketball in her gym She managed to keep me off every school team except for cross country running I ran every day after school with the rest of the guys who were trying out never missed practice not even when my ankles were killing me and managed to keep up with the pack I met the criteria for the team but she tried to tell my mom that they weren t equipped to handle a bleed if I were hurt during a meet Lucky for me my mom doesn t take No well She pointed out to the school officials that they needed to be prepared to provide first aid to every participant in the race They couldn t argue so on I ran through fallen leaves mud snow and sometimes searing ankle pain I was really sick twice and was in ICU because of illnesses that weren t directly caused by hemophilia but were complicated by it They made sure I didn t miss school then my teachers came to the hospital and my sister brought homework during my recovery Other than those times in hospital I played T ball skied rollerbladed and had a pretty normal childhood Eventually I had the doctors and my parents fooled into thinking I was more mature and ready for more responsibilities They took the Port a cath out and taught me self infusion Regular prophylactic treatment greatly reduced my bleeds Advocating on Parliament Hill with Dad With my mom Pam the past president of the CHS In my teen

    Original URL path: http://www.hemophilia.ca/en/our-stories/paul-w----meet-the-real-experts--life-stages/ (2014-10-09)
    Open archived version from archive