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  • Atresia
    shaped or absent outer ear This is the cosmetic part Microtia is almost always accompanied by aural atresia Our son has small somewhat underdeveloped outer ears they are about 1 3 normal size Jesseï ½s ears are considered as Grade II Microtia His left ear is more developed and borderlines on Grade I Microtia What is Microtia http www nyee edu faqlist html tablename faq key 60 The Microtia And Aural Atresia Division of the IRPS http www irps net microtiainfo html eMedicine ï ½ Microtia ï ½ includes pictures of Grade I II and III Microtia http www emedicine com ped topic3003 htm target1 A Guide to understanding Microtia http www ccakids com Syndrome Microtia PDF Hearing The effect of Atresia on hearing depends on whether just one ear unilateral or both ears bilateral are effected If only one ear is effected the hearing in the other ear is quite likely normal and hearing will be adequate for normal speech and language development It is very important to have this assessed early however and information should be obtained regarding unilateral hearing loss When the atresia is bilateral the result is usually a moderately severe conductive hearing loss approximately 50 60 dB This is similar to having really good ear plugs in your ears at all times 60 decibels dB is the loudness of a loud conversation so a loud conversation sounds like a very quiet whisper to our son without his hearing aid on Bone Conduction Hearing Aid When a child is born with bilateral Atresia he or she should be fitted with a bone conduction hearing aid as soon as possible our son got his hearing aid at 2 months old A normal hearing aid sends amplified loud sounds through the ear canal This does not work for

    Original URL path: http://www.stevesplace.ca/AtresiaMicrotia/Atresia.htm (2014-10-09)
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  • Atresia/Microtia: Our Story
    it on all of the time and not making exceptions e g for taking pictures We figured it was like part of his body and he was entitled to have it as much as he could At age five he continues to wear his hearing aid all of the time with the exception of bath time water play and when he is sleeping He insists on wearing it while he is falling asleep at night and we remove it afterwards Related Concerns It was not until our son was about 18 months old that we learned of the increased incidence of heart and kidney deformities in children with ear deformities We went to genetic counseling to determine whether or not our son had a syndrome they felt he likely did not and at that time he was referred for an ultrasound of his kidneys and a consult with a cardiologist Everything was found to be normal He was never referred for a CAT scan which seems to be unusual compared to families we ve spoken with from the U S We do plan to pursue this as children with atresia and microtia are also at higher risk for developing cholostreatomas a growth in the middle ear Services We have received ongoing services through the Elks Family Hearing Resource Centre including sign language classes a parent support group which was very helpful in providing information as well as the feeling that we were not alone play groups with hard of hearing peers and individual sessions when required Our son s hearing was initially monitored through the private audiology clinic where he was fitted for his hearing aid and then later by the local health unit audiologist because it was more convenient I feel that although the system here was not as organized or efficient as it could have been in directing us and thus other parents to the right resources initially once we got to them the services have been excellent Speech and Language Development Our sonï ½s speech and language have developed normally and actually a little ahead of schedule We used sign language with him which was not as difficult as for some other families because his mother was already somewhat fluent in sign He started signing at about a year old At 18 months his language was a combination of speech and signs and by age two he had dropped most of his signs and used speech as his main method of expressing himself We continued to sign to our son for awhile to make it easier for him to understand us but as his language level has surpassed our signing abilities we unfortunately do not use much sign anymore It is still a tool that we make use of in noisy situations when he has a lot of difficulty hearing Our son s speech has always been quite easy to understand he had some difficulty with sh which cleared up with a little work when he was

    Original URL path: http://www.stevesplace.ca/AtresiaMicrotia/OurStory.htm (2014-10-09)
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  • Atresia/Microtia Bone Conduction Hearing Aids
    working properly resulting in an intermittent or crackly sound we had to send away the whole hearing aid for repair We had the aid modified so there was a detachable connector between the wire and the hearing aid similar to that which was already connecting the wire to the oscillator This way we are able to have spare wires on hand and replace them ourselves see the pictures below The extra wires we ordered are shorter than the typical wires as they only have to be long enough to go behind our son s head rather than along the length of the metal band The longer wires we had originally used to dangle tickling the back of his neck and getting caught on things pulling his hearing aid off This hearing aid set up may sound complicated but really it worked quite well and we used it for three years Minor drawbacks included the tendency for the headband to get rubbed off pulling off the whole hearing aid and the fact that many people thought our son was a girl We changed our son s set up when he was three years old An audiologist had suggested that his one ear might be just big enough to hold an earmold to hang the hearing aid from So we had an earmold made similar to what is used for a typical air conduction hearing aid It was not used to conduct sound into the ear canal just to hold the hearing aid in place It stays in our son s ear quite well and the oscillator is held in place with wig tape alone on the opposite side no headband This arrangement seems to be more comfortable it doesn t fall off as often and looks nicer for a boy See pictures below This setup does not put any pressure on the oscillator but also has nothing touching the oscillator so little of the energy is lost Hearing tests comparing this to the traditional headband show slightly poorer hearing thresholds at two of the lower frequencies tested by 5 to 10 dB but slightly better thresholds at one of the higher frequencies by 5 to 10 dB Given the fact that this set up is much more comfortable than the metal headband and that our son uses an FM system at school the audiologist suggested continuing with this arrangement for now Our next step will be to pursue a BAHAï ½ for him BAHAï ½ Bone Anchored Hearing Aids The BAHA Bone Anchored Hearing Aid was developed in Sweden and has apparently been used for many years with great success It has been offered in North America for many years for adults but it is fairly recent that it has been accepted for children Simply put the BAHAï ½ makes use of a titanium abutment that has been surgically implanted behind the patients ear The hearing aid then clips onto this abutment and transmits the sound by bone conduction just like

    Original URL path: http://www.stevesplace.ca/AtresiaMicrotia/HearingAids.htm (2014-10-09)
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  • Atresia/Microtia Surgery
    266 9066 ï ½ Jane Picht Surgery Coordinator ext 110 Dr Jeffery Fearon Dallas Texas Children s Craniofacial Association P O Box 280297 Dallas TX 75228 1 800 535 3643 Dr Mark Mitchell Jones Atlanta Atlanta Plastic Surgery Specialists http www atlantaplastic com Suite 630 2001 Peachtree RD NE Atlanta GA 30309 404 355 3566 inquiries atlantaplastic com Dr Fernando Burstein Atlanta Pediatric Plastic Surgery and Craniofacial Associates www ppsca com Suite 500 975 Johnson Ferry RD Atlanta GA 30342 800 615 1323 404 256 1311 appointments ppsca com Dr Satoru Nagata MD PhD Japan Medical Director Nagata microtia Reconstructive Plastic Surgery Clinic 22 1 Sasame Minami Cho Toda City Saitama Prefecture 335 0035 Japan International Telephone 81 90 9969 8560 English Facsimile 81 48 449 3029 Domestic Telephone 048 449 3030 Japanese Only E mail Address NagataS7133 aol com http www20 u page so net ne jp zc4 kic koba U page Dr Gordon Wilkes Misericordia Hospital COMPRU Team 16940 87 Ave Edmonton Alberta Canada T5R 4H5 COMPRU E mail compru cha ab ca COMPRU Web Site http www caritas ab ca compru Dr Francoise Firmin Clinique Bizet 23 rue Georges Bizet Paris 75116 France Telephone 47237826 Dr Charles H Thorne New York http www microtia com 212 794 0044 Dr Fred Aguilar Texas Same office as Dr Jahrsdoerfer Dr Genecov Dallas Texas Dr Joganic AZ Dr David Leber PA Leber Wolf and Banducci Plastic Surgery 2807 N Front St Harrisburg PA 17110 717 233 4691 Dr Kesser GA Polyethylene Implant Similar to the Rib Graft with the exception of the Rib A polyethylene form is made and used to form the new ear instead of the rib cartilage Advantages No incision in chest polyethylene easier to form Disadvantages Multiple surgeries You can find more detailed information from Microtia Reconstruction Using a Porous Polyethylene Framework download it here in Adobe PDF 4 8MB or in Word 97 3MB format Dr Thomas Romo III http www earreconstruction com 135 East 74th Street New York New York 10028 212 288 1500 docromo aol com Anna Lynne Bogner has graciously offered to talk to anyone with questions albogner comcast net Her son has had the implant procedure done by Dr Romo Dr John Reinisch Los Angeles California http hopeforkids com body reinisch html http hopeforkids com body microtia html Division of Plastic and Reconstructive Surgery Childrens Hospital Los Angeles 2nd Floor Outpatient Tower 4650 Sunset Blvd MS 96 Los Angeles CA 90027 323 669 4544 e mail Cathy at contact hopeforkids com Atresia Repair and Middle Ear Reconstructive surgery Opening the canals Middle ear repair Again this is not an area we ve researched but the following sites might be helpful Dr Bradley Kesser Charlotsville Virginia http www healthsystem virginia edu internet people dop dopDetail cfm drid 1451 Dr Robert A Jahrsdoerfer Otolaryngologist Virginia Texas http www med virginia edu news Experts jahrsdoerfer html 6410 Fannin Dept of Otolaryngology Houston TX 77030 P O Box 10008 713 797 6608 1 800 615

    Original URL path: http://www.stevesplace.ca/AtresiaMicrotia/Surgery.htm (2014-10-09)
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  • Atresia/Microtia Intervention
    amplify what the speaker is saying and cuts out all background noise Some have an option to amplify the speakers voice but also have a microphone to amplify the sounds close to the wearer as well At the beginning of each year the Hearing Resource Teacher comes into the classroom and explains about hearing aids how the FM system does and about hearing loss in general We find this introduction and explanation satisfies the kidsï ½ curiosities and has so far eliminated any teasing The Hearing Resource teacher and our son teach some sign language to the class occasionally as well Our son enjoys teaching the rest of the class and the other kids like learning the signs We have also made some other changes to the classroom We have added tennis balls on the bottoms of all the chairs to reduce the background noise when they are dragged across the floor We have also added foam around the table legs to reduce the noise when the chair legs hit the table legs the same foam used to insulate copper pipes in the house very cheap Monaural Hearing The following is an excerpt from an e mail on the Yahoo e mail group If you havenï ½t yet you might want to check it out Really I want to know what it s like to hear the world with one ear and why or why not you would have surgeries done to reconstruct an ear From what I understand there are a couple of major differences when hearing with one ear Jesse uses a bone conduction hearing aid and as such hears in mono or similarily to hearing with one ear I think the main problem with mono sound is that you can t localize sounds Just as you can t tell depth with one eye you can t localize a sound with one ear You may be able to hear it just as clearly if you hearing in the one ear is good but you will have no idea where it is coming from unless of course you can see where it is coming from Our son has adapted quite well to this From a very early age when he heard a sound or his name called he would quickly scan the room to find where it came from We have also tried to keep this in mind when he calls us We are often saying Son Could you come here We re In the Kitchen and such In one on one situations our son functions quite well And most people would never know that he is hearing in mono Where we notice a bigger difference is in a noisy situation When you have hearing in two ears your bran can localize sounds And because of this in a noisy room your brain can help to filter out the sounds that you are not interested in such as the voices coming from behind you and the sound of the

    Original URL path: http://www.stevesplace.ca/AtresiaMicrotia/Intervention.htm (2014-10-09)
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  • Atresia/Microtia MSN Community
    on line etc etc If you send an e mail to the group everyone who is a member gets a copy Any member can choose to respond to the message with a question an answer or a comment This results in a running dialogue Members use this list as both a source of information and support Our Atresia Microtia Community http groups yahoo com group AtresiaMicrotia I happen to have unilateral atresia and microtia and have greatly enjoyed the warm feeling of encouragement and support expressed on this list ï ½ MaryKay If you have any questions please feel free to ask I am so relieved that I found this group and I hope that I can help someone like so many have helped me ï ½ Lyn I am pretty new to the list also and already have learned SO MUCH from the wonderful people here You have definitely found an incredible group of people Sandy This group is not designed for hearing loss in general but deals specifically with issues related to Atresia and Microtia We are merely hosts for our group although we do monitor it to be sure the discussion stays on topic and that mutual

    Original URL path: http://www.stevesplace.ca/AtresiaMicrotia/emaillist.htm (2014-10-09)
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  • Atresia/Microtia Glossary
    Bone Conduction Hearing Aid Cholesteatoma ï ½ 1 A pseudotumor usually occurring in the middle ear and mastoid Can be dangerous highly erosive and may cause destruction of bone and other tissue 2 cystic tumor containing epidermal or similar tissues that is growing in a confined area such as the middle ear frequently constitutes a sequel to chronic otitis media It may appear as a compact shiny mass Conductive Hearing

    Original URL path: http://www.stevesplace.ca/AtresiaMicrotia/Glossary.htm (2014-10-09)
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  • Chuck Norris VS Pacman » Steve's Net Curiosities – Updated Daily (almost)
    strike strong Blind Shopper By Tom Mabe via TomMabe Who Pwned Their Parents the Best Google Ad Contributers Thanks Brian Brushwood Thanks Bruce Thanks Carol Thanks Carolyn Thanks Colin Thanks Dale Thanks Dan Thanks Dave Thanks DaveD Thanks Dawn Thanks Deb Thanks Derek Thanks Diane Thanks Donna Thanks Ethan Thanks Gail Thanks Glen Thanks Gwen Thanks Hans Thanks Janice Thanks Jesse Thanks Jim Thanks Madeline Thanks Marilyn Thanks Martina Thanks Marven Thanks Mehdi Thanks Mephistopheles Thanks Pat Thanks Paul Thanks Peter Thanks Randy Thanks Richard Thanks Rob Thanks Robb Thanks Russ Thanks Sandra Thanks Steve Thanks SteveG Thanks Susan Thanks Teresa Thanks Thom Thanks Tom Mabe Thanks Wade Thanks Wally StevesPhoto Come visit my store Please Posts from days gone by Just Blow The Bastard Many of us can relate I am sure Paralympian eyes Olympic glory after miracle crash Run Walter RUN Dogs POV while running into water THE STEAK BREAKDOWN YOUR ULTIMATE GUIDE TO CUTS OF BEEF Blogroll 2012 NHL Playoff Hockey Pool 2013 NHL Playoff Hockey Pool Design Cabana Natural Edge Steve s PhotoBlog Steve s Place Archives October 2014 16 September 2014 70 August 2014 33 July 2014 52 June 2014 50 May 2014 62 April

    Original URL path: http://www.stevesplace.ca/JokeBlog/2012/04/16/chuck-norris-vs-pacman/ (2014-10-09)
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